As much as Ryan House, and similar programs throughout the country, will promote a quality of life for those children visiting who have life-limiting or life-threatening conditions, care at the house will embrace siblings and parents or family caregivers as well.
When families care for a life-limited child, that care is often 24 hours a day over many years. Families can feel extremely isolated and under enormous emotional, physical and financial strain. Family relationships can suffer, a parent's career may have to be abandoned, well brothers and sisters often feel left out, and typical family activities can become impossible.
Whether by way of a relaxing moment in the spa, or by mixing slime and making a mess as typical children do, caregivers and siblings can enjoy life alongside others who are facing similar situations. In those moments, they can live knowing that, although life may be short, joy can be found in the years, weeks, days, hours, or even moments ahead...
Tuesday, November 11, 2008
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